Originally from England, Elle resides in SC with her husband and daughter, a Bengal Cat called Izzy and a Boston Terrier, Bugsy.
This blog is her first and talks about life with and after a spinal leak. Elle was officially diagnosed with Intercranial Hypertension, Interstitial Cystitis and Chronic Fatigue syndrome in 2014. She is currently pregnant with her second child.
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Thank you! Beautifully written. How are you now? Fixed? I wish I could travel to duke too! Still ill 10mont confirmed low pressure ICP monitor but not getting investigated why. Your story give me hope! Thank you so much! Xxx
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Hi. Are you on our private csf Facebook page? If not friend request me at elle Willis. I was sealed the first time I went to duke but u have had rebound pressure issues since. I was on a drug called diamox for 8 months (my next blogs) but was able to work until the day my daughter was born and look after her ever day. So much better.